Welcome to PNH Support! We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging with the stakeholders in our world.

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Join OneSource™, a complimentary, personalized support program for people living with PNH and their caregivers. The program offers disease information, community resources, and ongoing engagement. Call to sign up or learn more.

We are a registered charity (1161518) with PNH patients/family from UK or Ireland as members. PNH Support updated their cover photo. #DidYouKnow that the PNH Global Alliance has …

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A patient led support group for PNH (paroxysmal nocturnal haemoglobinuria) patients in England, Wales and Northern Ireland.

PNH Support is a chartiable incorprorated organisation (CIO) registered with the charities commission of England and Wales (no 1161518). It is currently run by 4 volunteer patient trustees.

Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for paroxysmal nocturnal hemoglobinuria. myPNHteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

PNH Support values peer-to-peer support and considers it to be an essential and valuable way for people living with PNH (and their families) to share their experiences, support one another and reduce isolation.

Welcome to PNH Support! We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging together with the stakeholders in our world.