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Tilly Rose was a ‘medical mystery’ patient and spent two decades in and out of medical care. Here, she tells Bethan Rose ...
“My neurosurgeon had to hold my skull in place with his hands," said Megan King INSTARimages Megan King suffers from Hypermobile Ehlers-Danlos syndrome (hEDS), a condition that affects her ...
In 2015, doctors finally diagnosed King with Hypermobile Ehlers-Danlos syndrome (hEDS). Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily ...
There may be some amount of hypermobility. The symptoms of EDS vary depending on the type, and symptoms can range from mild to severe. The most common symptoms include: Ehlers-Danlos syndrome (EDS ...
Megan King suffers from Hypermobile Ehlers-Danlos syndrome (hEDS), a condition that affects her joints While getting her halo brace removed, she was internally decapitated, which is fatal in 90% of ...
Darcie is a woman in her early 20s with migraine, hypermobile Ehlers-Danlos syndrome, anorexia, irritable bowel syndrome, postural orthostatic tachycardia syndrome, autism, attention ...
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The Disabled-Parent Myth
The nondisabled version of myself parenting would have had a very hard time,” says author Jessica Slice. “My disability forced me to let go.” ...
The character is known for having health issues, with the author Rebecca Yarros modelling her condition after hypermobile Ehlers-Danlos Syndrome (hEDS), with symptoms ... So it was a book that I found ...
In 2015, she was diagnosed with hypermobile Ehlers-Danlos syndrome (EDS), a rare genetic disorder that prevents the proper formation of collagen, a key tissue connecting bones. Writing for a book, she ...