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BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million ...
My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.
Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...
Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...
Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...
It’s been years since I’ve attended a Great Strides walk, but this year I decided it was time to introduce my kids to the CF tradition that meant so much to me growing up.
BETHESDA, Md. (May 13, 2025) — As Congress considers deep cuts to Medicaid as part of budget reconciliation, the Cystic Fibrosis Foundation issues the following statement: The CF Foundation expresses ...
I’ve struggled with my mental health for as long as I can remember, but being diagnosed with bipolar disorder the summer after starting Trikafta made me question how the medication may have affected ...
Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF.
Growing up with CF created emotional and physical barriers that complicated my friendships and romantic relationships, but I’ve learned how to hold on to the people who truly support me.
When I was first diagnosed with CF, I wasn’t supposed to live past the age of 8. Then Trikafta gave me the chance for a future I wasn’t prepared for. I’ve built a new life for myself and learned to ...
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